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I just been diagnosed with stage 3 sarcoidosis. Doctor started me on prednisone daily for 6-9 months. In the past year I have been on 40-100 mg on and off more on than not. No relief. I had no idea what this was and not idea I had it until my biopsy confirmed it last week. I'm extremely depressed I have a 6 year old son I'm raising by myself. My doctor is telling me that it's not a serious disease but after some research I disagree completely. I'm 34 yrs old. Having shortness of breath, coughing, severe stiffness and pain in my fingers and knees, wheezing, and chest pain. I could definitely use some help and knowledge. Should I get a new doctor or just wait 6 more months in hopes of some relief?? I'm desperate as I have been the past year struggling with all of the symptoms just to be told I have pneumonia and bronchitis. Only to finally bothering the doctors so much and getting a cat scan, pet scan, and finally a biopsy to confirm this new diagnosis of stage 3 sarcoidsis.
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