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Just diagnosed

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shawnalicia
shawnalicia

I was just diagnosed with iih . What can I do to help the symptoms? Unlike most people I can’t get spinal taps cause I was also diagnosed with blood clots on and in my brain and the dr has me on blood thinners for the blood clots and also 1000 mg of diamox for the pressure. But the pressure and stiffness in the neck is still there. I am just regaining my sight and don’t want to lose it again. Any suggestions would be greatly appreciated 

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1 Reply

  • Christiwarrior
    Christiwarrior shawnalicia

    Posted

    The diamox  should really help it takes a little while to kick in. In my case it took about 2 weeks to really start feeling the changes. My main symptom was double vision. (No headaches for me) I just attempt to stay away from bending over or moving too quickly to help with my head pressure issues. The neck stiffness unfortunately has not resolved but I've always semi suffered from that anyway. It mostly comes and goes. I'm glad you're getting your eye sight back though that's amazing!

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