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Just diagnosed with heart arithmia

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nancy61778
nancy61778

Ive had sarcoid for 3 years.  It started with my glands on the sides of my face tripling in size.  Then the next problem was uveitis in my left eye leaving a "gel-like bubble" to see through.  Then  spike in right eye pressure in right eye.

Recently I have developed a heart arrhythmia.  Does this sound like it might be a sarcoid episode?  I was told not to worry that it was not too bad and if it got bothersome they could do beta blockers.   NO!

I have trouble with being tired as it is.   

Also, I wake up drenched in sweat some nights and within the last year I break out in a hot sweat with not much activity.  Could this be Sarc related?

I look up stuff on sarc all the time but ther really isn't much.  I live in the St Charles Mo area if anyone knows of a specialist please let me know.  

Thanx

0 likes, 3 replies

3 Replies

  • gina1970
    gina1970 nancy61778

    Posted

    Everything you've been going through is sarcoidios related. I'm not sure if there's a sarcoidios specialist near you but Cleveland clinic and John Hopkins are great . They have specialist that only deal with sarcoidios. I've had my sarcoidios for over 30 year's it's infested throughout my whole body.

    I wish you the best and good luck.

    Gina

  • rebecca20261
    rebecca20261 nancy61778

    Posted

    Nancy, 

    I have an irregular heartbeat and an extremely high heart rate.  My cardiologist did many tests then and then a heart cath.  All came out good.  I have sarcoid in so many organs he finally got a cardiac MRI ordered to see if I had sarcoid in the heart. It was negative.  The disease itself makes you tired.  I get out of breath doing barely anything.  Sorry, I myself am having a problem getting any doctors to help me here in tennessee. 

    • gina1970
      gina1970 rebecca20261

      Posted

      Are you seeing a sarcoidios specialist? If not find one and have the doctor try you on methotrexate injections once a week I've been fighting sarcoidios for 30 year's and for the first time in year's I think this sarcoidios specialist is on to something I go to the Cleveland clinic in Ohio but you can research for your are

      Good luck and I hope things get better for you

      Gina

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