Posted , 9 users are following.
So I'm newly diagnosed with Sarcoidosis haven't worked since June I'm taking prednisone not working for me I feel like I'm drowning breathless and pain in my ankles and joints how is there any kind of relief from this horrible disease???
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tyagi Katlis
Posted
kenny24313 Katlis
Posted
Hello,
Any relief from your symptoms? I was admitted to (Toronto General Hospital) in April (2016) and left a few days later on supplemental O2. I have no pain from Sarcoidosis but feel like I am being "held underwater" breathlessness even with the slightest movement. ***it sucks**.. I am totally disabled now and have applied for CPP disability benefits.
Meds: Prednisone (50mg) tapering off but have to increase dose frequently when coughing and unable to breathe. Methotrexate did not work for me. Heard about LDN(low dose Naltroxone) is being used to treat autoimmune diseases like Sarc. but the information is just anecdotal.
Kenny (Toronto)