1. Community
  2. Brain and nerves
  3. Idiopathic Intracranial Hypertension

Just out of hospital- 16 yrs old, and need answers! :)

Posted , 1 user is following.

Guest
Guest

Hello everyone,

I have just come back from the hospital after being diagnosed with BIH and have been given Acetazolamide. I was lucky to have been diagnosed with it after only around 3 weeks it seems but i don't see the neurologist for another 4 weeks now.... so i just had a few questions that some people with experience of it may know.

1. Can you drink alcohol while on Acetazolamide? just curious smile

2. How long has it taken your eyes to recover, if they have, from double vision?

3. Has anyone else developed this from forms of contraception, other than the pill?

4. Has anyone ever cured it by losing weight?

thanks for any answers/comments smile this has taken me a loong time to type!

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    Do not try and cure this by losing weight it causes severe abdominal pain on top of everything else- at least it did for me. I can't say much in reply to your other two questions but it took about 2-3 weeks for my double vision to go but don't worry it will smile good luck
  • Guest
    Guest

    Posted

    dear chloerose,

    My 15 year old daughter has just been diagnosed like you after 3 weeks

    and one of the first things she asked was was it ok to drink and she was told that there was no evidence that it would be bad to do so.

    she was also only slightly overweight but in the 3 months she has been taking acetazolamide she has lost one and a half stone and it still has not made any difference.

    and it took about 6 weeks for her double vision to go.

    I hope you are not suffering to much unlike my daughter she has had a very difficult time coming to terms with the many other symptoms that come with this illness.

    All the best and dont drink too much :wink:

  • Guest
    Guest

    Posted

    Hi Chloerose

    I just wanted to reply because i have been wondering if the contraceptive injection could have caused this for me. I was on the pill for about 3 years and in november changed to the injection, before that i was absolutely fine. Going to go back on the pill and see if anything changes. Whats your experience and do you mind me asking what contraception you use?

    I will be angry if this caused it as i was never told this.

    Also have you experienced any pain from taking the medication? as has it completely got rid of the headaches? think im being put on it this week.

    Heather x

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.