Posted , 4 users are following.
Just wondered it anyone else got it in the legs. Over the last 7 years since diagnosis I have had a sensation in the affected parts. Just in the last few months my legs have be feeling hot and heavy. Anyone else got this?
T
Ter
0 likes, 3 replies
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gina1970 terry39293
Posted
I also have it in my legs my nerves are shot the muscles are weak and they feel heavy and sometimes I loose feeling in my lower part of my legs and foot .
rebecca20261 terry39293
Posted
Terry,
I have sarcoidosis in my lungs, lymph nodes, back, uterus and liver.
In the past few months I have lost 75% of my hair and am guessing I have it on my scalp. I have legs that feel like they are 90 years old they feel heavy. I also have my toes and fingers go numb all day. The worst thing is the restless leg not only at night but during the day. I take medication for the restless leg, but can't take enough. I can't take anything for pain because my liver is swollen and overloaded with it. Thank God I have just been approved for disability. If you haven't done that yet it is hard to work with this disease.
AmandaPC terry39293
Posted
Hi Terry,
So I have it on my lungs, liver, spleen and down my left leg, maybe down my right but not sure. However the sarcoidosis on the legs is under the skin and there are several lumps which are different sizes. I have had them for near on 4 years now and they were the first thing I noticed before diagnosis and tbh I really didn't know what it was until I saw my specialist. I've been on steroids the.last 2 years now and luckily my.spleen has gone back to normal size but the legs are the same I have been told it may stay that way to. I get restless legs and I get pains in my shins and knees, however I drive for a living and I just push on through.
I hope yours are not to bad, I have just got use to it at this stage it's all I can do.