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good morning. i have been on acetazolamide 1000mg for 5 months now , having regular checks and lumbar punctures under my local neurologist. my pressure was ok last time i had lumbar puncture 21. im suffering still everyday throbbing headaches ,blurred vision , generally unwell , tired , feeling sick ,the headaches are SO bad when they are bad 😦 yesterday i seen a neuro opthamologist who has started me on a tablet called topomax said it might help with headaches aswell as pressure , last time i was at the eye hospital they said i had grade 1 papilodema , he said yesterday it hasnt got any worse which is good news and its not affecting my sight (even though my eyes feel like theyre suffering on a daily basis) 😦 whats anyone elses experiences with this awful disease and does anybody take topamax (topirimate) ? if so did it help you? thankyou for reading x
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