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I systematic sarcoidosis since around 1996. It is in every organ and was sent home to die in 2011. I refused to except that diagnosis and am still here today. That was my diagnosis from the Mayo clinic in Rochester Minnesota. I continue to keep a positive attitude and surround myself with laughter and other positive people. It is in every organ including my brain and am starting fail quickly. I now am in the hospital almost every month...if not from respitory failure to pancreatitis to kidney and liver failure. My feelings is to not take what the dr.s say to heart. They don't have a cure and it is still not known the best treatment for this disease. I don't about you but I am a fighter and have been on deaths door many times. I chose to retire on a very limited income close to a island and my mother whom I have never been close with and forgive and move on.
I am living my dream and am happier than I have ever been. !!!
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