Living with wegeners

Posted , 3 users are following.

Hi All

Just found this site , I was diagnosed with Wegeners approx 4 years ago. I was walking about for 9 months thinking i had a bad head cold after numorous visits to the Docs things started to go downhill. Aching joints , weigh loss red eyes crusty nose bleeds every morning. I was referred to See a consultant who admitted me right away . I was given a Cyclo by intrevious drip and left hospital 3 weeks later in a much improved condition. WG went into remission for approx two years then it raised its ugly head again. I was blasted again with Cyclo which kicked it into touch again . I have had some hearing loss as well as developing Psoratis Arthritus all tied in with the wegeners. I am now on many tablets everyday to help keep this thing at bay. Monthly blood screening also keeps things in check. I have continued to work successfully but still have off days due to fatique and soreness of the limbs. My outlook I feel is okay everyday is a blessing .

I hope this helps

Take care and God Bless Seanog

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  • Posted

    Hi Debbie

    The blood tests had shown WG was becoming active again so as a result I was given cyclo to subdue it. since posting I now have another date for more cyclo 19th of October same senario.


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  • Posted

    Hi Seanog

    i have just been diagnose with WG and an also from Twinbrook however livei n Lagmore would love to get chatting with you as I have not been able to contact anyone local with it. im new to this site so dont know how to make contact etc i would make my tel number available if your interested in chatting.


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