Looking for answers
Posted , 2 users are following.
Hi! My name is Kim and I am a 36 yr old female. I have been followed for a decade for a lupus/sjogrens mix. I got labs done extensively my first 2 years then went off radar (remission) until age 30. I got labs but everything was ok until I flared in 2015. Since that time I have had elevated wbc ( exact # changes but always high) currently test done last week is 13.5. Also my rbc are elevated (i've been taking prenatal with iron) at 5.43. Measurements have always been at the end range of normal or slightly elevated even before the prenatal. Elevated platelets dating back to 2006. Current # is 405. Hemoglobin and hematocrit are normal but noticed went up slightly ( in normal range still) with the prentalal. My crp is slightly elevated but not crazy. My elevated and shows high neutrophils. I currently been battling sudden onset of vertigo for a month
I requested apt with hematologis T as my wbc/platelets have been elevated over 2 yrs. I am scared because I want to have kids but know if I don't find out what's causing this elevation it could effect my health and any future baby. Any advice/feedback would be greatly appreciated.
0 likes, 2 replies
peter98873 kimberly12525
Posted
I somehow feel you may be on the wrong forum for your illness. Those on this forum will normally be dealing with
Polycythemia Vera and other MPN diseases which relate to problems with ones blood (red cell) count and bone marrow. It may just be possible that someone connected with this forum may be in a positiion to answer your queries and if so would probably reply to you. Polycythemia is a serious and long-term illness which currently has no cure but can be treated. In most cases the services of a Haematologist are required to control treatment. I am aware that your particular illness is serious and also requires specialist treatment but the recognised treatments for Lupus and P.V. are not the same and the symptoms of each have differences too. It could be that the Patient web-site conducts a forum to suit your affliction in which case you will need to search under the various headings available for the information. I am very sorry that I cannot be more positive for you and I wish you success in your quest to find answers. Maybe a further consultation with your own Haematologist would be beneficial. Best of ,uck.
Peter.
kimberly12525
Posted
I was was told MPD is in my differential which I understand is different from lupus but doesn't mean I can't have both. I will seek assistance from another board.