Mast Cell and Neurological Problems
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I know this forum isn't very active but hopefully some people will see it.
Does anyone else experience debilitating neurological problems whenever they have a mast cell attack? I've heard these mentioned but I haven't spoken to someone who is affected by those symptoms on the whole more than any of the allergic/multi-systemic ones.
I think I have MCAS - for me it's almost 100 per cent caused by food/ drink/medications. I'm in the system at the moment. When I fast lots of the symptoms start to slowly clear up. I can't really do anything most of the time. It's extremely stressful.
The only reason I've eventually been able to get help is because a friend (who i owe the world to right now) has been helping me to the hospital and fighting for my cause constantly. I'd been misdiagnosed/ignored for a long time and that led me to basically just existing in hiding and not being able to go anywhere, achieve anything work or have friends. I feel like I have a severe neurological disorder but we all know how easy it is to get dismissed by even the most well-meaning medical professionals I'm sure. Especially if you're a young-looking woman and are a bit different.
There's all kind of stuff going on but everytime i eat my vision changes, i get confused, i lose memory, localised head and nerve pain, migraines, i can't walk straight, balance problems, communication problems, can't focus or plan, my motor skills get worse, etc etc. I just lose everything i need to function basically . I think I'm just hoping to speak to someone else who has maybe received an MCAS diagnosis with neurological symptoms, or is in a similar situation to me.
I also have the allergic sorts of symptoms with everything i eat - itching, face-swelling, rashes, tinnitus, breathing difficulties, etc.
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