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mast cell leukemia is so rare anybody out there with same diagnosis?

Posted , 3 users are following.

cindy65527
cindy65527

Anybody out there with diagnosis of mast cell leukemia.

0 likes, 2 replies

2 Replies

  • nian
    nian cindy65527

    Posted

    I have been recently diagnosed with Systmeic Mastocytosis with skin, bone marrow and gut criterions. High trypatse levels but not Leukaemia (although I was tested as white Cell very low). I also fond out I have a Papillary Carcinoma in Thyroid which is not linked...I feel for you
  • Lea1788
    Lea1788 cindy65527

    Posted

    Other then it's the worst prognosis among all mastocytosis out there, no it's so rare you probably won't find anyone on here who can actually relate to you. sad

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