Medication Help for Wegeners

Posted , 14 users are following.

My husband was diagnosed with Wegeners last month. He's currently on IV cyclophosphamide and oral prednisone! We are trying to change to Rituximab(Rituxin?) after reading that there are less side effects to using this new drug. Does anyone have any experience with these 2 drugs? This is all so new and I don't know what to expect. We live in Seattle,WA. Is there anyone in this group from Washington state?

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  • Posted

    Hi, i am not from your state, I am from England and under Dr David Jayne at addenbrooks hospital, England, I am 29 years old and got diagnosed with GPA in February 2017 and I started on rituximab and I had 4 sessions in total and that was 1 session every 2 weeks, I didn’t take to well to it and had a bad allergic reaction to it which I ended up in hospital, I was then started on cyclophosphamide and so far have had 4 sessions of this too, personally once I got over the sickness from this drug I felt much better and felt it lasted longer than the rituximab, I’ve just been diagnosed with heart failure too which has been caused by the disease but I wish your husband all the best x
  • Posted

    We are in Canada.  My son was diagnosed in 2015 when he was 30.   When first diagnosed he had plasma exchange for 6 days and has been on Cyclophosphamide and high prednidsone.  The Cyclo was not doing anything so they took him off if and he has been on Rituxan.  Sooo much better.  He is tired for a few days after the treatment but feels much better after that.  He started with 4 treatments over 8 weeks.  Now its every 6 months at 2 treatments over 4 weeks.   He is also on other ( supporting drugs ). 
  • Posted

    Side effects of drugs depend on the persons health system, and the size of the dosage.

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