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I am new to this board and have been diagnosed with asthma and allergies. My tryptase level was normal as were other mast cell markers in a urine test, but the allergist is going to treat me as if I have a mast cell disorder based on my symptoms. Nothing showed up on the food allergy skin test, although I am highly allergic to grasses and other inhalants. Here are my questions:
I've had a chronic cough for years, and occasionally my throat and nose will close up completely so I cannot breathe at all during a coughing spell. Eventually it will release and I am exhausted for the day. There are no hives and this does not seem to happen in response to any food or inhalant, just triggered by the random cough. Sometimes it will occur when I've been asleep for a few hours out of nowhere. The doctor is calling this anaphylaxis and has given a prescription for an epi pen and a rescue inhaler with directions to go to ER after an episode. Since I can't possibly inhale during these episodes, I won't be able to use the inhaler. There is no point going to ER because once it's over, it's over. Does this sound like anaphlaxis to those of you with more experience? I am wondering if the epi pen is the answer.
Next, I have terrible flushing episodes at random times during the day, and they are worse at night. I always have one about half an hour after falling asleep, where I get very hot, anxious, have elevated heart rate and my hands turn bright red. My blood pressure goes down and I feel faint. A cardiologist recently diagnosed me with dysautonomia. Sometimes I sweat a lot during an episode, and last night I nearly fainted when I got up to use the bathroom. I had to lie on the floor for a while before I could get up. This is in spite of using medications.
I'm now using an inhaler for the asthma which has helped the cough a lot and increased my lung capacity significantly. I am also taking Zyzal, Zantac, doxepin and quercetin but the night time episodes have not diminished at all. They seem to happen at the same time every night beginning around 10 p.m. I don't get hives or itching with these attacks, but I also have neuropathy and it is highly activated by an episode. I am also woken up with a mild episode when it's time to get up for the day and that irritates the nerves terribly. Does this sound like a mast cell problem or something else? The trigger seems to be changing sleep states rather than an allergen.
I am happy to finally have doctors taking me seriously but am overwhelmed and confused by these episodes and not sure we have hit the target yet. I would appreciate any observations. Thanks
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