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It's actually my husband who has sarcoidosis, not myself - but we just feel so confused by it all!
Long story short - about two years ago, he had all these symptoms: night sweats, persistant cough, weight loss etc. He went through two months of tests (with the obvious fear being lung cancer) but the cancer results were fine - leaving him with the possibility of either sarcoidosis or TB.
Anyway - for the last two years, he's been monitored regularly - every six months tests and X-Rays - but today's test showed that, despite having no symptoms, his granulomas in his lungs have increased significantly, and all other tests weren't showing great results either.
This just leaves us feeling more confused about the condition - we felt so sure he was going to be told that things had improved, as he feels so much better in himself. The doctor was talking about the possibility of it spreading further, and even indicating that it could be life-threatening - as you can imagine, that sent us into something of a panic!
Any information from fellow sufferers would be so gratefully received, I've been looking for information online, but there's not a lot about people who experience increase in granulomas without any symptoms.
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