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My dad was diagnosed with fibrosing alveolitis when he was 58.
He did not respond to any medication or steroid treatment, and despite his age, did recieve a lung transplant.
His disease was so advanced, and so bad that he was originally supposed to have a double lung transplant.
Unfortunately, only one lung was available, and if he did not accept this organ, he would have been dead in a matter of days. He accepted the organ and immediately was taken to hospital for his operation.
The effects of the surgery were noticeable immediately, he had good skin colur, and was able to breath unaided within 24 hours, something he could not do just hours before his surgery.
My dad had his transplant nearly 12 years ago and is in good physical health. Patients are closely monitored, and have a full check up every 6 months.
It has made a great deal of difference to his quality of life.
I can't believe how many posts there are on here about FA, and so little is said about transplantation. And the posts i have seen, say that patients are given a 2 year life expectancy! Thats unbelievable, and not necessarily true.
As i said, my dad is still here nearly 12 years on, and was literally on the brink of death. He was bedridden, on 100% oxygen, and couldnt even go to the toilet. That is how ill he was.
My mum used to leave the back door open in case he died whilst she was at work and the paramedics/doctor needed to get to him.
The financial impact of this disease is cruel too, my mum took so much time off to nurse dad, she almost lost her job. She had been with the company 20 odd years, and they treated her terribly.
All those suffering with this awful disease, and their families....press the consultants for transplantation. It can totally turn this horrid illness right on its head.
I hope that people can take hope from my story, i have just stumbled across this site, and is the first time i have shared this.
Best wishes, and never give up hope.
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