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My poor dad passed away on the 27th July from Fibrosing Alveolitis at the age of 65. He left behinf five doting children and a beautiful wife, our mother. W are all so broken right now and I keep waking up waiting for him to come home, then reality hits and I just cannot take the horrible pain away that we are all feeling. I just want him back so badly for a cuddle and to tell him how much I love him. He had been very lucky with the disease and doctors had said that he had lived a very long time with it. 9 years. But, I still feel robbed. He was such a strong wonderful man with so much fun and love in his heart. Always a smile. We did not even notice he was gettng worse until he started on the oxygen, then the oxygen became all day and night. Then when it got to that stage, he was still walking with the oxygen so we all lied to ourselves or did not see it, I do not know, but it just happened so quickly, one minute he was giggling with us and walking, the next within a week he was gone after being taken to hospital as the oxygen he was on was not enough. At hospital they then increased it to 15 litres, 20 and finally 40 whilst he was on morphine and in a coma state. He passed away thankfully drugged on morphine as I could not bare to see my dad strangled from lack of oxygen and knowing that it was happening. He was so brave but secretly so so scared and cryed all of the time. It breaks my heart that we thought he would be coming out of hospital in a wheelchair and reassured him that he would, and he never came out alive at all. I am desperately unhappy and although have a big family, want to cry my complete upset to the world. Why did it happen to him???? I am just so sad right now. Will it ever heal this horrible pain. My mum is so broken. She has been left widowed at 58 and my little brother of 23 is bottling it all up. My heart goes out to all of you who are battling with this evil disease. Please do one thing for me, do everything you want to do now and do not wait as we waited for things and now I pray that we hadn't. Do not regret anything. I hope so much that a cure is invented for this one day. My dad was on a drug trial in France at Montpellier Hospital which stabalised his illness and gave him more years with us, but unfortunately not enough for us. The drug was interferon gamma 1b. Love you daddy xxx and a huge cuddle to everyone struggling with this disease and their families.
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