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ln March 2008 I was experiencing ear problems which then led to complete deafness in both ears. I was given numerous amounts of ear drops for ear infection which cost me an awful lot of money. I experienced
severe joint pains, sinus pains, severe pains in my head, severe nose bleeds and a bad cough, so I went to see an ear specialist as my GP had no idea what was wrong with me. The specialist then took blood tests that diagnosed I had Wegeners. I then found out that i had iflammation on my lungs which was causing me to cough up blood I was immediately put on steroids which helped with my hearing .
I was then referred to a rheumatologist who put me on an infusion of Rituximab at the countess of chester hospital which has greatly improved my condition. I am now in remission but have suffered from a kidney infection recently. However I feel more human now than I did last year. I found the whole experience very frightening and I felt very alone as noboby seemed to know what was happening to my body. It was very stressful for me and my family. I have been informed that I shou go on to live a normal life now with the right treatment. Hope is out there.... N x
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