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I wanted to post my experience with Rituxan so everyone know what i went through. You can read another post of mine as to what symptoms i have. Basically Nasal and then hearing loss. Today 2/19/2016 went for one rituxan treatment. I was very nervous due to the side effects.
Basically started at 7:45 with some iv, some sterioid and then 8:45 is when they started my treamtment. They pumped based on my weight of about 174 lbs 760 mg of rituxan at the rate of 13 ml per hour. they increased the rate till 88 ml per hour. That is a really low dosage as per nurse and they go very slow. I told her there is no need to rush and i rather be safe.
There was heaviness in my head and some dizziness, but i drove back fine by myself and ate some and just went to bed. Really tired and slept for four hours. Overall so far so good. NO vomiting, itching, fevers, chills or anything.
Knock on wood. I go next week for second infusion and have two more after that.
I hope your experience is same as mine. Please share your thoughts and i pray with everyone that you feel good. This disease is very hidden and need to make it more visibile. The more educated you are the better the diagnosis and treament.
If you have any questions, please don't hestitate to write and I will respond. The more informed you are the better choices you can make.
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