My name is Julia and I am 46 and been referred to specialist for possibility of having polycythaemia

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Hi everyone, I've now been sent to see a specialist with a possibility of having polycythaemia, I've been having symptoms for two years of dizziness, palpitations, itchy hands and legs, painfully joints, but the palpitations and headache has been the worsed I've kept thinking I'm going through the change and had blood test after blood test for this and that, the only thing that comes back abnormal is my high blood count and this has happened with five blood tests over a two year period, the last blood test showed my hemocrit levels at 61% and my haemoglobin I'm unsure but the doctor says my bloods have slowly risen, what was thought of been dehydration is now a concern, I see the specialist next week has anyone got advise for me it's all seems a bit scary? Could I of brought this on myself somehow? I'm a non smoker, I am overweight but eat healthy and exercise when I'm feeling okay and I do drink occasionally? Xx

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  • Posted

    DOES  heart palpatations go with PV? I had a bad case last night. I do have PV.
    • Posted

      I get Palpitations, however I've not got a conclusive reason yet for my polycythaemia, still under going tests, I get palpitations, extreme tiredness, dizziness and itching and I've a dull headache, I'm JAK2 negitive but I know it still does not mean you haven't got PV, it's like if you get breast cancer but you don't always carry the breast cancer gene. I'm only in the early stages of trying to find out why I've high red blood! How are you, are you JAK2 positive etc... Jxx

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