1. Community
  2. Chest and lungs
  3. Sarcoidosis

Nail problems

Posted , 4 users are following.

hayley2012
hayley2012

Hi everyone

as a newly diagnosed sarcoid sufferer I just wondered if anyone else has problems with their nails? Mine seem to be "lifting" and then after about 6weeks completely fall off.

My consultant said sarcoid can spread and affect any where in the body, I don't know what to do about it and if anyone has any advice I'd be grateful 

Hayley x

0 likes, 12 replies

12 Replies

  • linda39
    linda39 hayley2012

    Posted

    Sorry Hayley

    I have not come across this and not sure that I have heard it mentioned on the forums either

    But it just goes to show sarcoid can just about affect anything Nd anywhere on the body

    • hayley2012
      hayley2012 linda39

      Posted

      It's so strange Linda it starts about half way down the nail and it just separates when I have googled it some of the pictures look just like my nails I will ask my professor when I see her 

      Hayley x

    • linda39
      linda39 hayley2012

      Posted

      ooh that sounds nasty.

      I always had weak nails but for the past few year now I actually get them doen every 3 weeks, I have gels over my nails so 'maybe' that has helped.

       

    • rachael88657
      rachael88657 linda39

      Posted

      Gel nearly wrecked my nails but then I don't need any help with them. I'm lucky in that respect
  • di01694
    di01694 hayley2012

    Posted

    Hi Hayley, 

    I also have nail problems. My nails split, crack, flake and snap at regular intervals. I keep them rounded as I find that better than squared, and rub in nail oil. But whether this is Sarcoidosis or just genetic, I can't say.

    di

    • hayley2012
      hayley2012 di01694

      Posted

      Hi Di

       my nail bed just lfts away about half way down I have never had a problem with my nails before and it's affecting both fingernails and toe nails it doesn't hurt until they actually come away

      hayley

  • rachael88657
    rachael88657 hayley2012

    Posted

    Wonder if it's anything to do with calcium levels? Fortunately I don't have this problem but mention it to your dr
    • hayley2012
      hayley2012 rachael88657

      Posted

      Hi Rachel 

      it only started about 4 months ago before I was diagnosed and my consultant recently told me sarcoid can affect you from your hair to your nails he took one look and said yep it's definitely sarcoidosis although they still had to do a lung biopsy and it was confirmed on Wednesday 

      I will mention it to my professor when I see her though 

      Hayley x

  • di01694
    di01694 hayley2012

    Posted

    I've asked but was told nails are made keratin so it's not calcium levels, but there may be another supplement that would help.
  • di01694
    di01694 hayley2012

    Posted

    I've just googled to check and I was wrong, nails are apparently mainly protein so a protein rich diet might help. Also recommended was taking silica (horsetail herb), evening primrose or starflower oil. However, I've tried counter-acting Sarcoidosis through herbalism and ended up more ill than before I had been taking the herbs, but that could have been a coincidence.
    • rachael88657
      rachael88657 di01694

      Posted

      That's unfortunate for you as my herbalist specialises in auto immune conditions and touch wood, herbs seem to have helped keep my sarcoid under 'control'. Just goes to show that we are all so different in the way we react to treatment.  Regrettably one size does not fit all!
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.