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Need answers please! Pregnancy and Diamox

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laura0227
laura0227

I am 34 years old and in December, 2017 my husband and I made the decision to begin our journey to try and get pregnant.  Well, at my January neurology visit I was diagnosed with IIH and my doc said do not get pregnant while taking it (he told me this at 2 separate visits).  I told him that we just started trying to have a baby.  He said it can cause birth defects, but it is a class that hasn’t been studied.  We asked what our options are because I need the Diamox.  He told me to take the Diamox, work on losing weight, and then another LP would be done to see if the numbers are good,  then he would wean me off of the Diamox and then I’d have to be off of the Diamox for 2-3 months before we can try again.

 Uh hello?  I’m 34 and not getting any younger.  Plus if God forbid we have trouble, that doesn’t leave us much time.  Please, I need to hear from people who have been on Diamox, got pregnant, and had a healthy baby.  If people have read anything about pregnancy and Diamox I’d like to know that too.  If anyone knows of anyone who has had a baby and the mom was on Diamox and the baby has problems due to the Diamox, I'd like to hear those stories too.   Can’t wait to hear from everyone.

Thanks for reading,

Laura 

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