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I've had 3 strokes, surgeries on both my hips because the meds the Dr's threw at me is now killing my bones.
I was diagnosed with sarcoids after 3 years of me running to the Dr and ended up on all sorts of depression meds because they basically told me I was crazy.
My first stroke landed me at Mayo Clinic in Rochester, MN
There I was diagnosed with Neurosarcoidosis, a PFO ( hole in my heart) and Factor V Leiden (a cloding issue)
I had another stroke during an angiogram procedure. 1 in a 1000 chances they had said. I had one on their table. I most definitely got everyone all excited for a while.
They gave me a higher dose of prednisone until I simply could not handle the side affects. Then we tapered, and started methotrexate. But not fast enough because mixing prednisone and with Factor V can kill bones. And that is excatly what happened.
I'm very upset!! These Dr's knew it could happen.
I can bounce back from side affects from methotrexate but I can't bounce back from my bones dying.
I had surgery on both hips about 4 weeks ago.
I stopped taking almost ALL medications because I had another stroke 2 month ago. Their meds are not helping.
I went to the hospital the day of my last stroke and they told me that I have the flu and I should go home and drink water.
I was very dizzy and throwing up.
My nerves in my back along my spine are fried. My legs don't sweat because of it.
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