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  3. Pulmonary Fibrosis

New diagnosis

Posted , 7 users are following.

jinty1956
jinty1956

I have been getting increasingly breathless over past 6 months. I attended my gp 4 weeks ago and she organised a breathing test. The upshot of this is it has shown i have a restrictive lung problem . I am awaiting an appointment at respiratory clinic . My father died from pulmonary fibrosis 5yrs ago and I help nurse him in his last months as he did not want to go into hospital. I am now worrying that I have the same. I have not told any of my family yet as I don't know how.

Just looking for someone to talk to about all this .

Thank you Jennifer

3 likes, 17 replies

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  • tracyjane555
    tracyjane555 jinty1956

    Posted

    hi my brother has pulmonary fibrosis he has quiet afew 'flare ups' but the last one he had he just couldnt breath or talk he went into hospital and they said he has mutipule infections they gave him medication for this and the oxygen theyve had to give him stronger medication now to clear infections and theyve put him in a room by his self so he dont catch anything else bless him his only 52 yeard old lost loads of weight and his told me he lost 60%of his lungs further tests have shown his lost more of his lungs since im  worried about him and ive read this is the end stages is this right? someone please tell me

    • bob80691
      bob80691 tracyjane555

      Posted

      Hi tracyjane555:  I really am not qualified to answer or assist you on this but i'm sure someone who contributes to this forum will be able to chat with you on this.  Good luck.

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