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My name is Sarah, I am a 58 year old women who was recently diagnosed with PRV. I am so tired, weak and dizzy, my sight seems to be affected, I have headaches,and my bones hurt..
i have seen a haematologist who puy me on the drug hydroxycarbamide 500 MSG 1 tablet a day.
I have had 2 pints of blood removed in the last two w,seeks and due to have another removed this week. As my spleen is 16% enlarged I am booked to have a CT scan.
Due to having suffered DVT on 7occasions I am on Clexane injections 1a day..
i use Oilatum to shower in and take Loratadin to help stop the itchi which help to a degree.
Can anyone tell me if I will ever get rid of the headaces and feeling so weak , tired, and generally having no energy to do much. Just having a shower I have to rest after!
I am beginning to feel very isolated and down and need to talk to someone who completely understands this illness. I am JAK 2 positive.
i have just come out of hospital after having a small clot on my lung, which I just didn't know whether to go to hospital because I already inject with a heparin but was in pain whIch was pluresy. I am really scared I will have a stroke or heart attack.
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