Newly diagnosed XXY, 40.

Well you were lucky to have that high levels. My level without the testosterone inhexrions is 34 with injections it is over 350. Usual rate for 46 xy males is over 200 to ?

One xxy male yeats ago was taking over 900 mg of testosterone because that is what he needs it.

During the xxy convention in Aurora, Colorado in June. One symptom may be a slight tremor in your hands. Some research indicates a tooth enamel problem. Or a smaller little finger than your other finger. I have a slight termor meaning I cannot hold a camera steady to take a photo of anyone. My little finger is smaller than my other fingers but I have no problems with my teeth. Every xxy has different symptoms. Most have atrophied testes which produce some testosterone or none. With hormone you can expect more body hair, but not everyone has it. When I started in 1982 at age 29, testosterone increased chest and back hair, but less on my legs

I can grow a beard but no hair grows under my nose, so it is an incomplete moustache. Testosterone will not increase muscle size. I have tried weight lifting but only obtained muscle tone and slight muscles in my arms back and legs. But like I said every xxy make is different. I have over 20 medical disorders including 2 genetic kidney disorders which is why I am on dialysis. I am also a below the knee amputee because of my kidney disorders and diabetes. I am not tall, I am 5 feet5 inches tall (US standards) or 165cm (UK standards) . I have given you both since you did not indictate where you live.

I live in the US in Colorado.

If you have 47 chromosomes, you are automatically classified as having Klinefelters Syndrome at birth. There is some dispute among other xxy's on this forum who think differently than my opinions.

If you look under trisomy 23, or Klinefelters Syndrome , or hypogonadism or 47 xxy on the internet it may give you more information.

I was diagnosed at 29 years old and I am now 66. I have been on testosterone since that time and if you don't get any hirmones, you nay get osteopenia or osteoporosis.

Testosterone comes in injections, A nurse injects my hip every 3 week. It is usually the cheapest. There are gels but they can be expensive. There are pellets. But a new testosterone pill may be out in 2018 according to the man who invented it and was a guest speaker at the chromosome convention in Aurora Colorado on June 24th or 25.

You should expect more answers from the other xxy males on this website.

Welcome to the new world of xxy.

I should tell you most are heterosexual but a few are gay. I am gay, but the majority of the xxy's on this website have women partners.

One individual at the convention told his girlfriend he didnt need a condom because he is sterile and can't produce any. children which was okay with her but a few men haven't told their girlfriends that fact. Only a doctor can tell you if you can or can't have children

I am not a doctir.

Good luck in your quest to find out more information on 47xxy or Klinefelters Syndrome

Oh hello,  

I'm at a family gathering in Tolaga Bay, all the people I grew up with are here, and their children, and even in some instances their childens' children.  I have my daughter also.  Of course I'm not supposed to have children, when  was 17 I was diagnosed, and I did indeed have KS, well the beginnings of it.  Being XXY and having KS are not the same things.  Those who develop seminiferous tubule dysgenesis, go on to develop KS, that is the symptoms of the disease STD.  That is why you were diagnosed, and you were not diagnosed before you were, as you didn't have symptoms that anyone could see, then you did develop something.  When you were born you did not have KS as you did not have the disease KS is the symptoms of, in fact I argue that in the modern world KS should never be allowed to develop, and if it does that is a sign of poor medical care.  Doctors need to get off their bottoms and do their job properly.  All boys as they enter puberty, and at the expected halfway point, ought to have their tetes palpated, which will reveal STD, as their balls will be small and firm, if not at age of onset, certainly by age 14.

I don't know what you can expect for the future on testosterone.  It all depends on how clued up your doctors are, and what your response is to the testosterone you're getting.  If you are like me, you'll have the therapy as ordered by your doctor, and nothing will change at all.  

This site would be so much better if I could edit my posts!

Even if there was a spell checker!

Or at the very least limited time to edit posts in!  

For 25 or more years I took testosterone for damn near zero results.  It wasn't until my wife pointed out a few things did I question anythng.  I suppose having a wife proved my sex drive was more consistent?  However, if YOU don't tell YOUR doctor that YOU'RE not happy, s/he will assume you are happy.  They're not going to increase or decrease what you get until you tell them what you get is too little or too much.

I was diagnosed when my wife and I were trying to conceive,,,,, and it wasn't happening ... We both got examined by doctor,,,, and I was diagnosed with 47xxy mosaic, , , meaning that the concerns,, don't effect every cell. I cannot produce children with my sperm . They say KS, klinefelter's syndrome effect 1 in 500 boy births,,, and it got both of us . Many boys growing up,,, are weaker, than other boys his age . Some boys, men have anti - social problems,,,,, weak teeth,, tall, . If you are on Facebook,, search for Klinefelter's,,,, support,, and join. ....

Well, I rewrote the information on Wikipedia, it lasted a good month before it was rewritten again to represent the common knowledge, and I put in references to all my changes, people just prefer common knowledge.  Wikipedia is not a good place for detailed, accurate, information on anything, any topic.  Wikipedia is written by the general public, nobody has any proven talent, or education, to justify being an author on Wikipedia.  All we need is an account and a willingness to edit.

When Klinefelter et al (and others) were writing up the notes of 9 men with a particular form of hypogonadism, that had not been documented before, what do you suppose they titled their with?   It wasn't Klinefelters syndrome that's for sure!     I've never actually seen the original report, that might be a mission to find?  Maybe you'll beat me to it?  Reports written prior to 1959 describe it as Seminiferous Tubule Dysgenesis.  I suppose Klinefleter et al did too?   All Klinefelter did was document reports, he didn't actually examine anybody. He was a doctor, just not a very good one.  And the name 'Klinefelter' is an Americansiation of a German name, we almost 100% pronounce it incorrectly.  

I don't know what 85-110 means.  I have a few clues, but they might be wrong?  Testosterone in the normal levels is a damn near 1000 point scale, so there's a wide range of normal.  There's low normal, most XXY's are found at low normal at whatever age they're diagnosed.  There mid nornal, most males are found  there, and there's high normal, a few males are found there.  I wasn't given a number, although I suppose one has been documented?  I just have a description of what I looked like, and where my LH and FSH levels were.  They were exopected to be high, and they were high.  Guessing I'd say 85-110 was a low normal range of testosterone, but I don't know what scale is being used.  Maybe you can ask your doctor? 

I don't know why you're having 2 injections a month, that seems unusual.

Maybe, when you've been taking testostwerone for a while, you'll report sex as being in the forefront of your mind, where it usually is for normal males?

Thanks everyone for your responses. I live in MN, US. I also have most all the signs of ks other than the fact that I can grow facial hair. A VA Dr ran the genetic test 12 years after finding out that I was sterile. I have been on medication for depression, anxiety and add since I was 13. I'm not really impressed by care i get from the VA, but its free. I have messed up feet(which kind of makes sense now) .

All my health care has always been free, and it's as good as anybody else can get, well anybody else in England where I lived when I was a teen, tracking down females for sex, being a typical male.  And free in my home country, where I lived most of my life.  Free health care is good, sensible, health care.  Trouble is, even in the USA where most health care is insurance based, XXY's don't get diagnosed at any greater rate.  It's still around 75% go undiagnosed, their entire lives.   Boys balls are just not that interesting for regular primary physicians, G.P's, or Family doctors.  If you're a boy with no balls they'll be interested in you, if you're a girl with balls they'll be interested in you, and if you're diagnosed XXY or with KS by someone else, they'll likely be interested on your balls, but if you look more or less regular, and you have basic pubic hair, they'll assume you're normal genetically. I didn't look normal, unless absolutely no male musculature is normal?  Unless ultra skinny was normal?  So I was diagnosed (or suspected) at a job interview at Ford Motor company.  And the doctor who was most interested in  my balls, and stroking my pubic hair, who was causing me great distress, was in fact the husband of the woman who did my karyotype.  So I think they had a plan, I think she told him what to look out for in males who might have KS, and he set about finding them.  In my speculation, if she hadn't trained him up on what to look out for, I would not have been suspected that day.  Anyway, he wrote a letter, sealed it in an envelope, gave it to me, and said "give this to your doctor."   And I said, "I don't have a doctor."  And he said "Well get one."  So me being ultra naive didn't even bother opening the latter.  I gave it to the surgery of the only doctor I knew of, my mothers doctor, and within an hour he was ringing me himself telling me to visit him.  That was my second job interview after leaving school. I thought it was normal for doctors to ring patients themselves and make appointments.  Little did I know!    Then I had my balls squeezed again, twice in one day, this is too much!  And the second doctor said "We think you have Klinefelters syndrome, we think you have an  extra chromosome"  and the rest, as they say, is history.  

So that's free health care.