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I have just been diagnosed with IPF. It has been found at a very early stage for which I am most grateful to my GP for sending me to see the consultant. I only get short of breath on exertion.
I am not eligable for Nintedanib because my %Predicted FVC has to be <=80% here in the UK. It is 112.6%. It seems unreasonable (to put it mildly) that I must wait till I am almost dead before i can get treatment.
i would love to hear from anybody in a similar position.
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