No symptoms
Posted , 6 users are following.
Can anyone help me please,I have recently been told I have fibrosis on my lungs after a routine X-ray,since then I have had 2 more X-rays,spirometer tests,lung function tests and a Bronchial wash.all the readings and the wash have either showed no abnormalities or as in the X-ray's slight scarring on the bottom of my lungs,I have no breathlessness,no coughing or wheezing so I am at a loss.my consultant wants me to have another C.T scan and if that doesn't tell him what type of fibrosis it is he then wants me to have a lung biopsy.Seeing as I have no symptoms whatsoever he said its in the early stages whatever it is,I am at a complete loss and don't really want a biopsy if I can avoid it,I am age 54,a smoker and a type 1 diabetic. can anyone help with my query please,any advice will be much appreciated,thanks.
0 likes, 19 replies
john15065 Scotty2121
Posted
Initially I was prescribed N.A.C. which didn't really do much for me. I was also getting frequent chest infections which really caused me problems so they put me on some permanent antibiotics called Septrin. Initial results have indicated that one of the side affects of Septrin is of benefit to IPF so that's a bonus.
I take 3 tablets a week and it's on going until I hopefully start treatment with a new drug called Nintedanib in earlyJuly. It won't provide a cure but may help to slow down progression of the fibrosis. It's been approved by N.I.C.E. and is on limited release through the NHS.
I also have ambulatory oxygen which is really useful if I have to exert myself e.g. mow the lawn, walk a distance - that type of thing.
One really important thing to do is to keep as fit as you can - even though it's not a great feeling to make yourself breathless when, as with myself, I'm often breathless anyway!
Good luck mate! Be positive: it's so much more pleasant than being negative - for you and those who care about you.
There are new medications becoming available all the time and, God willing, maybe a cure will be found.
Scotty2121 john15065
Posted
karen26258 Scotty2121
Posted
But, I've suffered for years with shortness of breath, chest stabbing and dry cough. Like you I've had the tests too. I just think you doctor is being very thorough, my doctors have taken months and months to get a diagnosis. Not had a Bronchial wash tho, is it unpleasant? I wish you well the CT scan has much more detail on it, take a look at You Tube there's a lot of descriptions on it.
brenda62546 Scotty2121
Posted
Thank you, and Scotty, Good Luck, please keep us updated!