Numerous test done and still have not been diagnosed

Please help! I’m open to each opinion. 

I’m writing for my fiancé, the problem is very odd and has gotten worst over time so I will start from beginning. 

Back in October of 2017 he has had bad pain in the left knee, however he always had bad pain in that knee so we thought nothing of it but he would mention it felt worst. This knee pain was always during high school while playing football and his doctor back then told him that the bone was basically poking out but it would be something he has to leave with. SO knee pain in the left leg was always there however during December 2017 we took a family vacation which was to Kentucky. We drove from California to Kentucky as an adventure and to visit family for Christmas. Well, temperatures were way below to what he’s use to and he swears during that time his knee pain got worst. It started to affect they way he walked. We were concerned but thought nothing much of it. So in February we notice his muscle was gone! He lost a lot of muscle for a stocky guy. There is still a little bit left but all muscle is pretty much gone at this point from his leg as well as the pain had started to go to the right new and by March 2017 the pain started going downwards to his feet. Also he know was having a hard time walking because the pain was hurting so much!! He literally wanted to considered using a cane or crutches. By the way he is only 26 years old. We then took him to his primary which is the same primary from high school so she is aware of the issue with left knee pain however states that could not have caused this. So during  March 2018, she told him to attend physically theapry and she did some blood work. She also did an x-Ray of his legs, which everything was fine. Blood work came back, they did find some things were high such as hormones, salts & cholesterol however at this point the pain is like 10+ and he’s unable to sit or stand comfortably, we notice major weight lost and muscle loss and just by moving his toes they were cracking so we demanded an MRI  however the primary said for it to be covered by insurance we must complete physical theapry for 6 weeks. So he did that and cried basically after every session because it was really painful. During his theopry sessions they did not know what to do because how he was in so much pain but they did some stretches and no difference to his body was done. He even did the stretches at home daily, in pain. We then did the MRI which was of the lumber and nothing was found according to primary dr. They then referred him to a neurologist who apparently was so busy the appointments were like a 3 week wait. The neurologist had no idea what was going on and wanted to do a nerve study, well we finally made it to the appointment however before that appointment he had a break down and fell multiple times in one days because he stop taking pills that we got from an emergency room for pain. Those pills was giving a bad side affect, took the pain away but horrible state of mind and depression. That ER subscribed him I believe flexoroid, for muscle spasms. (By the way that ER did not see him because apparently it didn’t seem life threating so they sent him home with pain meds) SO anyways, after he stopped taking those pill about four days later the pain was back and worst and he fell multiple time one time it was just straight back and he seem so confused and lost so I then took him to another ER that admitted him for four days ran multiple test and nothing. They found nothing, HIV Testing, Menegitist, Lumber Spain puncture, and much more(If you name something I’ll let you know what was the results, I did obtain a copy of the medical records) unfortunately they way he came in they gave him Morphine for the pain & put him as a risk for falling as well. I believe the morphine was a bad idea him vomit the whole hospital stay and ate nothing during those days. The did multiple MRI’s with and without contrast and nothing. They sent him home with a walker and for a moment they were thinking he has dandy walker because they also found a spot in his head that appears to be liquid they say. They also found some disc bulging but claims it’s not too serious. I’m no doctor but they way everyone responds to this they seem so lost his primary even told him she didn’t know what else to do it’s out her hands at that point and he had to see a specialist, the neurologist. So after the ER visit we explained it to the neurologist office and they moved the appointment closer, and basically said he passed the nerve study, so this isn’t related to the nerves. His primary suggest we refer him to UCLA as well as a doctor in the primary building states no doctors in our city are any good and were better off in UCLA so we put the request and our insurance denied based off medical condition. SO I do not know what our next step will be at this point everyone who knows him says he looks sick and has lost so much weight, mainly muscle. He better mentally and dealing with this doing daily routines however is not working because actually September 2017 he was terminated which was for wrongful termination. We still do not know what the reason was for which I’m now going to mention the only changes in his life, which was the termination from work. He did pest control for 7 years, did not wear a mask, apparently none do however during the ER visit we also mention to test for checmical poisoning. He did start back smoking marijuana after the termination which he did not do while working because he drove a company vehicle but before working with the company he smoked. As of today I took him to another primary for a second opinion who will now be sending him to another neurologist for a second opinion. However the second primary wants him to see if he stops smoking will it make a difference(& he’s trying, so has not smoked), and the only othe life change is we notice like maybe during March 2017 he became like lactose. Like every time he drinked milk or ate cheese he would have bad diarrhea and go to the bathroom 3-4 times daily. So we are now wondering if that effected something during the time we notice he had this problem he was stubborn and continue to eat it. Well because he’s never had a lactose problem but as of two weeks now he has not ate anything containing milk to see if there is a change. 

Any suggestions??? 

Any details I left out, please let me know! He feels weaker and weaker, any opinions will help! 

Also the last thing I forgot to mention as of now he is twitching and sharp pains in different areas of the body, and more cracking with his joints. 

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