Posted , 29 users are following.
I'm 68 and have had painless head throbbing in the top, back and sides of my head which either wakes me up at night or in the morning. This has been going on for the past 7 months and no doctor seems to know what it is. I am afraid they think I am crazy, but what I feel is real, and I simply don't feel well for hours after waking. My head feels full when I lean over. I have an occasional headache, but it does not occur in the back or top or side of my head, only in temples or sinus area and is not connected with the throbbing. The headaches seem to be connected with sleeping wrong and waking with a stiff neck. It is not a migrane as there is no pain, no aura and occurs only after I have been lying down.
This is complicated by the fact I have had BPV and tinnitus for 20 years so doctors blame one thing or the other. I sometimes have sinus/allergy issues, but I know the difference and this is not sinus. I wake up in the morning feeling groggy, ears ringing, tired and light headed (and scared). I've had an MRI and MRA, both negative. I was checked out by a neurologist, EENT doctor and a cardiologist and they found nothing. My BP is on the low side so it is not hypertension. I often wake up in the morning with a stiff or sore neck. I have glaucoma and see the opthalmologist every 4 months with lots of tests and he has said nothing about any optic nerve problems for cerebral spinal fluid issues, etc. I sometimes take tramadol for back pain and timoptic for my glaucoma, also prevacid for reflux. I've tries stopping them one by one to see if they are causing it. They are not. I am at my wits end. I feel like this is serious but no one is giving me an explanation. Could this be IIH?
1 like, 46 replies