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%In 2008 I had a busy year, Working nightshift bringing up a 4 year old, pregnant, studying and to top it a all built a house. Had a beautiful boy with no problem on 28th Oct. Moved in to our dream home which we saved so hard for and I was looking forward to Christmas. Our house was over budget but I was going back to work early so that was no worry. I always had nosebleeds which began in my first pregnancy and for about 2 years my left nostril was blocked. I always had to blow out large hard bleedy chunks which was tube like. My eldest son took a sick bug which I then did. He got over that and his appetite returned mine didnot my bug like stomach pains left but I couldnt eat ,drink without vomiting. Up each night with a newborn I was tired. So Fatigued and then I turned yellow, coughing up blood. Locum G.P advised to get rid of kids for a day and was not worried about the blood. I had stopped urinating so went to another G.P who arranged a blood test. The results were so bad the whole surgery couldnt believe I was still standing. I was taken to Aberdeen Hospital where my life changed I was in Renal failure and had 9% function had a biopsy. plasma exchange which meant a central line in the neck. Transfusions for one so scared of needles and was never ill I faced alot. I was threatened with dialysis but never needed it. I now have 40% function I was diagnosed in Jan 2009 and by March I had a breakdown I Had 2 little boys and I was scared for them I had suffered a broken heart. I am a headstrong person who is capable of alot but this knocked me so hard. 6 months on I am feeling great and heading back to work My home is great and this Christmas is to be the best ever Im going to eat more than just one parsnip. Last year my little boy jumped into bed and said Santa has been I turned over and couldnt have cared my husband knew something was up as I always made an effort to make things special. What helped me most was getting in touch with at least one other person. I have now met 6 and a support group may be starting. When you are first diagnosed its bad especially when you have kids its every parents nightmare. My consultants are fantastic and I will be eternally greatful. The people who got in touch with me I thank for showing me that a normal life can be possible. Im getting back to cycling and walking and love taking the boys swimming. I dont think why me anymore I grab each day with both hands instead of cowering in the corner of the living room. I have only been on 1 antibiotic since Jan so am lucky regards infection. Its an emotional roller coaster but hearing from others is the best help especially positive stories. My story I have given permission to be used to gain awareness of the illness in order to tempt donations to research and the Renal ward in Aberdeen. I can now give something back. Much love to all affected by Wegeners Debbie
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