Pku...

Posted , 3 users are following.

Has anyone with sarcoidosis got pku?

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12 Replies

  • Posted

    No, I don't. Do you?Is there a connection with it and sarcoidosis?

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    • Posted

      Yea I did the same it doesn't say anything about links between them. I'm on a waiting list I'm not getting it until March 😔 the waiting lists here are 6-7 months and that's suppose to be fast track.

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    • Posted

      Well I did inquire with my specialist nurse and to my surprise she told me I'm better of staying public because waiting lists are just as bad and I would have to pay for everything IE consolations, scans, xrays, I mean I pay between €60-70 euro a month just for tablets any time I visit my gp it's €60 and if I'm in hospital it's anything from €150-€250 a pop.

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    • Posted

      6-7 months is such a joke, it's not acceptable to expect someone to wait that long. You can get an MRI in limerick privately at an acceptable time frame. I know it would be an awful haul from Dublin. Don't know how much it is but you should think about it.

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    • Posted

      I do have private health insurance i was thinking of getting of it then the kids came along so I hung on to it and I'm glad I did now. I ask my mother and she thinks an MRI brain is around €250 in a place in Limerick. Am I allowed say the name of the place on here or not? I could find out for you.

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    • Posted

      Yea I'm going to try go for it next year see how I get on. I'm not sure if you can say maybe pm me instead. My doc will have to give me a referral.€250 ain't bad.

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