Poly Vera and Serum Ferritin level
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Have found the forum most useful. Am at early stages of diagnoses for possible Haemahromatocis as my Iron levels were at 451 ug/l and some of my bloods (Haemaglobin, WB, RB, haematocrit, Neutrophil) have come back as above range. Am still awaiting gene test results.
what I’m trying to do is figure out if Poly Vera can drive iron levels up that high or are the raised blood counts a by-product of the iron levels
any wisdom appreciated, thanks in advance
0 likes, 5 replies
angela_o..o Guest
Posted
When I first presented myself to the hospital with a couple of very blue fingers and a completely undiagnosed condition, some blood tests were done. I remember that the very first hospital doctor wrote to my GP with the results and I remember reading “Ferritin: normal”. I have a brother who used to be a vet and I asked him about this. I can’t remember his reply but I do remember him saying that they were checking for haemachromatosis because he and I have one set of grandparents who were Irish. Haemachromatosis is called the Celtic Curse because it is very much more common among people with Irish and Scottish ancestry than other people. It seems that the normal reading of ferritin ruled out the Celtic Curse in my case. I can’t say if that has any bearing on your case though. You may have some completely different problem which will “come out in the wash” as my old mum used to say.
Wait and see what the results say.
Guest angela_o..o
Posted
harrishill1 Guest
Posted
Hi. billythetipdog. I don't know about iron levels, but if your red blood count and possibly your white count are too high, then it is likely that you may have Polycythemia Vera. Your hematologist would then test to see if you have the jak2 gene mutation. That would prove you have PV. It is pretty simple. Hope that helps. harrishill.
Guest harrishill1
Posted
peter98873 Guest
Posted
Hi billythetipdog,
What an extraordinary synonym you have used. Yes, I'd go along with what has already been said here. Ferritin does occasionally present itself as a topic of question but it seems it is happily controlled. The blood readings you offer really can be associated with a number of other unrelated illnesses so just bide awhile for the test results to become available. PV is very rare and serious a disorder and from what you have explained, unlikely to be your problem. One can never be sure though. One is better off without it. Good luck.
Peter.