Polycythemia Vera rubra

Posted , 6 users are following.

hi there

ive been diagnosed with pcv 2 years ago and altho i suffer from the normal side effects like fatigue vision problems and so on.

however the itching is the worst i wonder if any fellow sufferer's have any ideas on how to stop it, an American woman mentioned protein powder before a bath or shower but im not sure so if any ideas please get in touch.

Tony

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    Hi Tony I have been taking Beta Alanine Powder for about four years & it gives some relief from the itching. I take 1/4 teaspoon before I have a shower. It reduces the amount of time I itch after having a shower. I also take it if something triggers of my itching during the day. It takes about 15 minutes to settle me down. I also take non drowsy antihistamine. I very rarely have the three hours of itching that I used to. If I am busy & forget to take it then I suffer.

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