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Prednisolone...... advice pleasee

Posted , 8 users are following.

katld
katld

Hello lovley people

So today i saw my specialist and she gave me prednisolone? Worried about taking steroids and im wondering if ths is rash..my lungs are very inflamed and so are my lym nodes around my heart.

So can people tell me there views and experiences on this drug? Any tips?? Or advice would be great..... what about sleeping if it affects your sleep can you take something to help with that?

So a little more info im taking 6(tablets a day) x pred for the first week. 5 x tablets a day for the second week 4 x tablets a day for 3rd week and so and so on. Im sure you get the picture. First day tomorrow morning. And now i cant sleep meh!

0 likes, 26 replies

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  • zss
    zss katld

    Posted

    Hello katld,

    Please search on my ID of ZSS. I have gone into reasonable detail on several posts of what to expect when taking prednisolone for a long time.

    Briefly, my side effects were nausea, "going loopy", when driving, feeling like you are not going fast enough and consequently speeding. Being irritable and aggressive, sleepy and off your food.

    The worst ones are substantial weight gain, mostly consisting of fluid and Addison's disease after long term use.

    When coming off prednisolone, you must follow the doctor's instructions carefully it is most important.

    I hope you are feeling OK.

    All the best.

    • AmandaPC
      AmandaPC zss

      Posted

      Hi zss,

      What is addisons disease? As you may have read I have had alot of side effects from the steroids and I am still on them prob for another year at this rate.

      Plus my specialist has taking me.off my bone tablet, I don't know why... But I'm not seeing him till January so I will find out then if I've to go back on them.

    • katld
      katld zss

      Posted

      For some reason i only just saw this when someone else posted on here it came through my email i didnt mean to ignore you lol... yes im on my 4th week and as for side affects ive had very few. The driving thing. That is weird you saying that as i was saying to my partner i felt very weird when i have been driving on occasions its hard to explain though..ive had some seriously achey joints mainly my knees hips and fingers but other then that so far ive been ok. I started on 60mg im now dowm to 40mg on tuesday i go down to 35mg smile but i feel no effect no different at all. I wonder if that means its not working x

    • AmandaPC
      AmandaPC katld

      Posted

      Hi katld,

      Your 4th week is still very early to know I was told at least a couple of months before I notice any change. Your weaning off them very fast if your down to 40 mg already, are you going to be on them long term?

      I can't believe you are both talking about driving because I have noticed changes especially driving at night, maybe it's the glare from street lights and other cars I'm not sure.

    • katld
      katld AmandaPC

      Posted

      Not really sure tbh. I think they are seeing how they get on with me. She didnt really say anything to be honest just got told i have sarcoidosis my lungs are very inflammed and she wants me to have 12 weeks on steroids i dont know what the norm is or anything. Or even if they have had any effect at all x
    • zss
      zss AmandaPC

      Posted

      Hello Amanda, Addison's disease in the context of taking prednisolone is a deficiency of the naturally produced steroid, cortisol.

      Taking prednisolone makes the body wind back it's own cortisol production.

      In my case, after taking two long courses of prednisolone in 2014 and 2015, my cortisol levels took a long time to recover. Most of this year up until about 3 weeks ago, I was still recovering from cortisol deficiency. It was a constant feeling of fatigue and everything was an effort.

      Right now, I only have the fatigue caused by the sarcoidosis, so I have enough energy to enable me to resume my home renovations on a room.

  • katld
    katld

    Posted

    So can anyone tell me how long you have been on this medication. Also how do you know if its working when i was on 60mg i felt ok but now i feel no different. Cant tell if its had any effect because nothing feels different. Also does anyone else take anything dofferent like the immonesupprespnts ive read about or another drug i cant actually remeber what its called? Or do steroids work for everyone x
    • GAB85
      GAB85 katld

      Posted

      Hi katld, I was just wondering how you were getting on? I have been on steroids for around 3 weeks now but am not really feeling much of a change. Just wondering if they the meds kicked in for you in the past 4 months?

      Thanks

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