pulmonary fibrosis

Some of the posting are really sad and replying requires som courage.

Are you posing on a regular basis?

I do not \"post\" regularly. It seems to me that I am very lucky as my condition seems to remain stable i.e. breathlessness is the chief problem. I was diagnosed about 4 years ago.

The breathlessness is SO FRUSTRATING. I have worked \"9 to 5\" all myu life at a demanding job and was looking forward to \"doing my own thing\".

I have been feeling so lethargic and lack lustre depression was setting in. Suddenly, I read about the possible effects of statins which I have been taking for about the same time.

After talking to my doctor I have ceased to take them and feel so much better. Friends say I am more like my old self.

I read this column because I feel so alone with ithe disease; I have never met anyone with it but I do have an e-mail penfriend (contacted through the British Lung Foundation). That is also very supportive - and interesting 'cos she lives a long way away and leads a very different life to me.:blue:

Best wishes to all who run and wrie this site.

I know just how you feel regarding feeling so alone with this disease. Please look at my profile. I would be very interested in hearing what helps or hinders your condition. I was diagnosed with diabetes just before I got the IPF diagnosis. I was very disappointed to find I had diabetes (borderline but got worse until I was put on medication - metformin)because I have always followed a healthy lifestyle but during the course of researching IPF I learned high blood pressure and diabetes are side affects of IPC. I do hope you will look in on this forum soon . I was not put on statins but am on steroids and carbocysteine. I also have homoeopathic treatment. How active are you and are you any better than when first diagnosed?

J