pulmonary fibrosis
Posted , 7 users are following.
My dad has just been told he has pulmonary fibrosis & I'm terrified, I stupidly googled the condition & it was a case of get your shovel & start digging now. I try to be strong & positive but it seem's to be all doom & gloom because it's so poorly misunderstood. The though of watching him suffer hurts my heart so much because I don't want to lose my dad, does anyone know if you can live the rest of your life with this if your general health is ok?
0 likes, 9 replies
barbara87789 Elle81
Posted
I am very sorry to hear about your father.
I have never heard of this until my husband was diagnosed with it.
He never smoked never drank was very hard working and an athlete.
We went to so many doctors, so many tests. Same thing no cure. Could get lung transplant but we were told most patients die before that has a chance to happen.
All I can say is that we all have a journey that we must travel. My husband said he will enjoy the time he has left and live life to the fullest and that he did. I lost my husband nine months after he was diagnosed. May 2014.
We married young had three wonderfull children, and six grandchildren.
I will keep you and your family in my daily prayers. Again I am so very sorry!
Elle81 barbara87789
Posted
I just take each day as it comes & look for positive stories for some hope atleast, it's all I can do I suppose. Life is a funny old thing. X
neville93106 Elle81
Posted
be of good cheer and insist on the NHS giving you the drugs and the kit. Go to specialists, not just GPs. Recruit your GP to be on your side.
neville
neville93106
Posted
alan75679 Elle81
Posted
amy_64527 Elle81
Posted
I am in the same situation with my father and am trawling the internet for all the information and support i can find. My fathers consultant has applied for a drug called pirfenidone, and I'm praying to god it all goes through and he gets it. My mum and I are trying to find a plan b somewhere.
My thoughts are with your father x
Elle81 amy_64527
Posted
I'll keep you & your family in my thoughts. X
dawne22391 Elle81
Posted
neville93106 Elle81
Posted
good luck.