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i have been diagnosed with IPF since January 2015 this has been confirmed after a few lung test. i am due to have a ecocardiogram test next week. since January my breathing and coughing has got a lot worse. I use fostair inhaler. i can bearly lie down to sleep most of my sleeping is in a chair because the coughing is just too much. I found the specialist Dr reluctant to expain the results of the lung tests. she finally told me that only 50% of my lung is fuctioning, what does that mean? but she is not recommending oxygen relief because oxygen level is ok at resting. The specialist has recommended that i see a specialist team with a view to starting steriod treatment which she suggest may or may not work. I sleep little, i cannot even laugh without getting into a coughing fit, my wife does all the driving, labouring work, i cannot even carry a small bag of shopping 10 steps without being out of breath. I tried to ask the right questions with the Specialist but i dont know what to ask and i feel they won't expain anything unless you ask the right question. do i have 1 year or 10 ten years to live, how much damage has been down to my lungs, i don't know. where do i go from here, can anyone help!
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