Pulmonary fibrosis left lower lung

Posted , 6 users are following.

Anyone out there know anything helpful ? Will it go to 2nd lung. I'm 58 and just been diagnosed my husband has dismissed it as just another menopausal problem. What can I say bury your head dear this is real. I'm a bit upset but I'll cope I have no one to confide in talk to about it without heart break. I want to be sure of my facts I'm also a cystic fibrosis carrier anyone know for sure if they are related

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  • Posted

    Good morning Lesley.  I'm in Canada but Pulmonary Fibrosis knows no borders.  I was dianosed with Idiopathic Pulmonary Fibrosis four and a half years ago but I must be luckier than most as I do not seem to exhibit most of the symptoms I have read about.  I have read the input you have received from Linda and Neville and appaud them for their efforts to assist you.  you should cetainly insist that your GP refer you to a lung specialist as IPF is a very rare condition and GPs are certainly not knowledgeable enough to treat you.  I also encourage you to learn as much as you can about IPF.  Here is a link to the Canadian Pulmonary Fibrosis Foundation.  It is full of good information and I hope it helps.  My best to you going forward.  http://cpff.ca/

    • Posted

      Thank you Bob for taking the time to respond, I have spoken to the British lung foundation and they say the same. It's difficult to take on the GP services here as I feel out of my depth stupid I Know as I used to nurse so perhaps I don't want to be branded as a problem patient especially as I'm new to the surgery having relocated from Scotland with no symptoms, to suddenly have a cough that drives me mad followed by x-rays and a diagnosis within weeks of registering with them. I wish you well and will chase a consultant appointment this week . You never know I might have one this time next year. God bless Thank you

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