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Ive had Sarcoidosis for 2 years, and been off steroids for nearly 2 months and determined to stay off them. I would say the Saroid is more noticable if thats the correct phrase but my mind is much clearer without them. I also have scarring to my legs from the infections i had at the time which cause me alot of pain and make it harder to walk. It has been suggested to me that i register myself as disabled. Now I have no issue with the 'label'. My Dad has been disabled all my life (Im 42) through a car crash and other friends and family are disabled so its 'normal' to me, if that makes sense.
I was just wondering if anyone else was registered disabled through Sarcoidosis and as its a 'rarer' disease was it a problem. I dont see Sarcioid as a disability its a way of life to me now and although im much better than I was, im still quite ill with it. Yet it may be a positive step where society, workplace maybe able to be more supportive? The jury is out for me on this one
I hope you fellow endurers of Sarcoid are doing ok and a day of sunshine brightens you all up
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