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reply to Janet37924

Posted , 1 user is following.

harrishill1
harrishill1

Hi is, so they act as though you aren't sick. Yes, I think because it's a rare disease, people think it sounds weird to them that we could have too much blood in our bodies. I too worried about how long I would live with this serious disease. I put everything in my daughter's name, even my car. I felt I shd prepare to die. Now, the more I learn, the more I think I could live a normal life span. I have had this diagnosis for four years now, and am 71. I walk an hour each morning, then go directly to the gym 3 days per week for an hour. Then go directly to curves the other 3 days per week. That means I work out 2 hrs per day. Sure, I will sometimes take an hour nap around noon or so. But I clean the kitchen a few times a day at my daughters busy home. I also wash the floors, do laundry, cause they use lots of towels, clean outside too. I am always busy

2 likes, 4 replies

4 Replies

  • janet37924
    janet37924 harrishill1

    Posted

    Hello and thanks for your response.

    It is reassuring to know that other people feel the same as I did when I got my diagnosis. You certainly sound very active - I try to walk with the dog every day but never fancied the gym!! I do feel much better about the whole thing now that my blood counts are under control (hopefully) but the initial diagnosis was a bit of a shock as I have never really been ill (fortunately).

    I am glad to hear you feel so well and able to carry on as normal. I am a bit younger than you (67) and have only had this disorder for a relatively short time. Reading the comments on this forum have certainly cheered me up a lot.

    Janet

    • harrishill1
      harrishill1 janet37924

      Posted

      Hi Janet, yes, I've had PV diagnosis for 3 yrs. I started going to curves, and then increased the exercise to 5 days per week, and stay an hour. Most women there are told to start with 3 days per wk, and only 30 mins. But, it's fun cause we talk a lot there, and it's a social thing. Helps with boredom, something to look forward to. Exercise is also good for my arthritis. good for the bone strength.

      Harris22 

    • janet37924
      janet37924 harrishill1

      Posted

      Hello again

      You have made me feel much better about the PV. I had got the idea in my head that life as I knew it was over! Bit dramatic or what? At first I was at hospital just about every week - now its only every two months or so which is much better. I used to go to Keep Fit class up to being about 50 but tailed off after that due to my daughters work hours (we went together) Poor excuse I know. Perhaps I had better get my lazy self off to excercise class or something. Will check out Curves - think I have seen this advertised locally.

      Janet

    • harrishill1
      harrishill1 janet37924

      Posted

      Hi Janet,just  wanted to mention that with my medicare, ILOOK ed in the book; and silver sneakers gives me free curves, or many other gyms. I go to curves three days a week, and 24 hr fitness the other three days. I like to change it up, use different machines sometimes. However, at curves, there only other women, which is nice for socializing.

      Harris22

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