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Sarcoid and Hypercalcemia

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Papa0003
Papa0003

I have had a flare up in the form of high blood calcium. I was admitted to the ER with a calcium level of 15.2 and my creatinine was 3.14. The high calcium cause some permanent kidney damage and i have been trying to get my calcium and creatinine levels stable for over 10 months now. I have been on prednisone and weened down a few times to see my numbers climb back up. I recently started taking azathioprine in order to ween off of prednisone but i felt terrible and just stopped the aza. I was extremely fatigued, passing out and nauseous. Two questions: 1. what is the best place in the country for secondary opinions/treatment courses and 2. Has anyone experienced this type of flare up? I am currently being treated by a “sarcoid” doctor out of northwestern and she makes this process sound completely normal and standard. Any thoughts or advise?

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