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hi, I'm emma im 31 yrs old with 2 kids.
I've just been diagnosed with sarcoidosis and looking to speak to other sufferer's so I don't feel like I'm going mad. looking back I think I've had it for yrs .but a couple of months ago I was waking every night with pins and needles in my hands and legs and when I got out of bed I'd hardly be able to walk as my ankles were so stiff and sore.i just put it down to the shoes I had been wearing and all the walking I'd been doing recently.then about a month ago I noticed these odd red lumps all over my legs and my ankles were swollen. The next day I couldn't walk and all my joints in my whole body were hurting (including my jaw) my boyfriend took me to see a doctor where I was told I had erythema nodosum and given tablets.i spent a week and half in bed and had to had an ice pack on my knee.Then just as the pain started to improve from that i started to get chest pain and heart palpitations and i was really short of breath, to the point I was out of breath just watching TV. I was sent to the hosptial and spent a week there. I have granulomas in my chest and having a biopsy on sat aswell as a 24 heart monitor fitted.i hate moaning but it's really scary as I get so tired and I've been getting alot of back, hip and lower tummy and leg pain as well as awful vivid dreams.im only on normal painkillers.
I need to get back to work and start being able to pick my daughter up from school.i don't feel like me anymore and it scares me
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