Sarcoidosis

Posted , 3 users are following.

Thank you guys for your feedback. I had a CT scan after a car accident. they picked Sarcoidosis up on nmy lungs. Sorry i didnt explain myself propery the first time. My doctor always said i had astma. Thank god for this forum. You all understand xx

0 likes, 5 replies

5 Replies

  • Posted

    What's the road ahead in terms of planned treatment?
    • Posted

      hi there, i go to the specialist on the 22nd of this month. I have know idea whats ahead. Have to wait and see. xx
  • Posted

    The same with me mine was discovered after a CT scan after I had collapsed with heart problems, later turned out to be the course of my problems, now I've got it in my heart & lungs & have been put forward for a heart n lung transplant! They put me on loads of steroids whitch have made me put on about 25Kgs & do little else but I've been on Azathioprine for the last six months & the sarcoid in my lungs seems to be letting up
    • Posted

      good god. I feel for you. Keep me informed how you get on. Thinking of you.

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