Sarcoidosis and colds

Posted , 9 users are following.

Hi alll

Recently diagnosed in June this year with sarcoidosis had a relatively normal life until this hit, my question is when you get a head cold or indeed a chest cold is it worse? What are the effects or signs to look out for? Anything that helps ?

Any help is appreciated

Colin

0 likes, 39 replies

Report / Delete

39 Replies

Next
  • Posted

    Where hove you got it.
    Report / Delete Reply
  • Posted

    Hi Colin,

    I was diagnosed in March of this year. I am on reducing dose steroids and will continue on them until next year sometime. I have wondered about that myself. Luckily I haven't had any colds etc yet. Being on steroids reduces your immune response and it makes it easier for you to contract infections. The best thing is to avoid anyone you know that is sick and take precautions. Speak to your doctor right away if you feel unwell in any way. Maybe ask them about getting the flu vaccine. This probably isn't very helpful. Hopefully you won't get anything.

    Regards,

    Polly

    Report / Delete Reply
    • Posted

      Hi Polly

      Thanks for the reply, I'm just over a head cold but chest feels like it might be getting heavy if that makes sense, so just worried a bit, I'm not on meds for the condition doc says I don't need them not yet anyway

      Report / Delete Reply
    • Posted

      Hi Colin

      I have it on my spleen kidneys lungs and legs.

      I have been on steroids since October and have been reducing them from 35 mg and now I am on 4 mg a day so happy about that however since November i have had at least 3-4 chest/ lung infections head colds and worst of all a serious bowel infection which I was hospitalised for a week for. My eye sight has worsened and my appetite increased alot which lead to weight gain however steroids bloated my face and stomach anyway.

      At the moment I'm suffering from dizziness and headaches but holding off for another week or so to see my doc.

      Stay clear of anyone who is sick, but being honest with you you can't wrap yourself up.in bubble wrap, your immune system will weaken without a doubt and you will catch infections but just rest and try eat the best you can trust me it helps.

      The steroids have worked so.far for the sarcoid so I am happy for that they have saved my life.

      Report / Delete Reply
    • Posted

      Hi Amanda

      Thanks for the reply, I hope you're feeling better too, it's a tough illness to deal with , I didn't realise the immune system suffered but hopefully I can change that I've changed my diet to lots of fruits and more veg and reduced other things too take some vitamins too

      Report / Delete Reply
    • Posted

      Hey,

      Before the steroids my immune was weak still, kidney infections, joint pain and colds and coughs were the.main ones so just try to look after yourself the best you can. I have more posts on her Colin, have a read the info might help you.

      Are you in the UK?

      Report / Delete Reply
    • Posted

      Hey

      No I'm not in the UK hope that doesn't matter found this site by just looking for more info it's good to ask questions with people who have the condition too

      Report / Delete Reply
    • Posted

      Hi,

      It's an auto immune disease. Try stay away from multi vitamins, vitamin d amd calcium, they are like fuel.to the fire, sarcoidosis feeds off of these, trust me I have experience from this also my specialist here in Dublin has advised me of this.

      Report / Delete Reply
    • Posted

      No that doesn't matter, sure I'm in Ireland I found it doing exactly the same.

      Yea vit c is great also try some anti inflammatory vegetables and fruits, also ginger, liquorice and turmeric.

      Ask me what you like, I can help the best I can.

      Report / Delete Reply
    • Posted

      Ok pineapples, garlic, cauliflower, mint, cucumber, spinach, sea kelp, seaweed, like I said liquorice but from a health shop not a sweet shop.

      Best thing is to juice everything that way you get it all in one hit., I make pineapple, spinach, cucumber, celery, ginger, lemon and pear. Try make it 80% veg and 20% fruits. Also add the turmeric too.

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up