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I was just put into the hospital last Friday 8-28-14 and was having problems breathing. My oxygen would go down to as low as 58 at times then back up to 90. I had many tests but the one that came back with the return of Sarcoidosis in the lungs hit hard. I told my doctor flat out that I will not go back on steroids...never. It caused so many secondary problems and I will not go through that nor put my family through it again. I was also on methotrexate and plaquenil. While those two also had side effects, it was nothing like the steroids.
If any of you have had recurring sarcoidosis to the lungs, what protocol did you take? I'm seeing the doctors next week and I would like to have something to check into before I see them. Please, any help is always appreciated.
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