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my husband has been unwell now for 14 months.
he was hospitalised and was told he had pneumonia.
certain symptoms persisted and a consultant felt he had had sarcoidosis but it had gone.
our problem is the breathlessness, dry cough and fatigue remain. Prednisolone works wonders AT THE TIME but the effects quickly wear off -he is now on his third dose of prednisolone since 25/4/2014
An ENT scan shows one nostril is completely blocked and the other partially so he also has difficulty breathing because of that too -could this blockage be caused by sarcoidosis? I feel we are being shunted from pillar to post as no-one seems able or willing to say exactly what is wrong. He has had extensive tests -cardio-pulmonary, spirometry etc. he has been in bed for 36 hours waiting for the latest dose of steroids to kick in. We are at our wits end.
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