sarcoidosis may be attacking my brain

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...am concerned because i think sarcoidosis may be attacking my brain ...feel dizzy at times and have trouble focusing off and on also ...have no idea what if anything i can do about this ...wondering if exercise would help ...was diagnosed in Nov. 2016 with cancer by ...but after going to many doctors all idications point to sarcoidosis ...the sarcoidosis center at Hopkins in Baltimore confirmed other doctors findings after their own extensive research...

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  • Posted

    Where was it first diagnosed. Have you have MRI or CT scans to show any inflammation in the brain area. Wife diagnosis Sarcoidosis. Was having facial ticks, headaches, tiredness and around the piturity gland. Now on steriods. Symptoms seem to be improving but there are obviously the steriod side effects.
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    • Posted

      ...was diagnosed by a doctor who was giving me treatment for back pain ..so he had no business even trying to interpret the MRI that i had requested because the treatment i was receiving was going nowhere ...then went to my family doctor ...and from there off on a long journey from specialists to specialists ...finally to Hopkins where a doctor who does NOTHING but sarcoidosis treatment and research reached the conclusion .....this was last fall and i felt far better than i do now ...although today pain in legs and ankles a bit better ...and dizziness has susided ..thanks Bill ...i would prefer if possible to stay off steroids ...have not had MRI or CAT scan for brain ..as this dizziness is a new development
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  • Posted

    I wonder the same thing. Recently I have notice slight dizziness. Before that, I had a strange sensation across my brain. It's difficult to  describe it but, it seem like quick lighting bolts but it was not painful at all. Now, I get the same thing and  light dizziness comes after that. It could be my blood pressure meds causing the dizziness but I can't be sure. Have you heard of Dr Sebi? He has herbs that gets rid of inflammation in the body. He had always said that all diseases are caused by inflammation. Get rid of that, heal your body.

     

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    • Posted

      ...thanks Diane...have not heard of Dr. Sebi...are you using his herbs now ? and if so how are they working ?....what he is saying makes sense to me ...i don't take blood pressure medicine ...dizziness worries me more than pain ...i do have kind of a DIFFERENT feeling in brain also ...can't desribe it ...just different 

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  • Posted

    Had ringing in my ears in 2015, was treated with steroids. Ringing came back in 2016 even louder was treated with MORE steroids. October 2016 got a really bad case of Vertigo, and my body has not been the same since. My balance and equilibrium are off and not too mention I'm nauseous and dizzy quite a bit. So after my eye became infected my doc sent me to a Rheumatologist and he diagnosed me with Neuro Sarcoidosis. This sounds like what you might have. Needless to say I have lost my hearing in my left ear and have had to have surgery on my left eye. They said the sarcoids is attacking my nerves.

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