Shortness of breath

My sister had exactly the same but it did go

Hi, yes I had this ,my breathing got so bad that I was in hospital for a week with awful chest pains and palpations.it still hurts to take deep breaths now.this was a couple of months ago.luckily I don't get pains like I did!its scary 

I have sarcoidosis as well. Of the lungs among other areas of the body.  It usually does go away as quickly as you get it.  Like those with pnuemonia, some may be suffering from sarcoid, but after the antibiotics it goes away and they are non the wiser.

I was d'xd in 2005 by a biopsy of the lungs and lymph nodes.  If you want to know for exact sure, your doctor should suggest you get dx'd by a biopsy as this is really the only way to know for sure if you have lung sarcoidosis.  Just a suggestion.

Anyway, hope you feel better soon and you're on the mend.

Regards,

Frustrated

Pete

Yes chest pains are the most common indicator and shortness  of breath is the other one when you are exerting yourself. Like pushing a barrow full of sand etc.

Steriods is the most common treatment if your doctor feels that action is required.

I recommend you get a referral to a respiratory lab to obtain a comprehensive evaluation of your condiction.

Hope all goes well for you

Phil...Tangles

Hi Peter,

usually, pain goes away under anti-inflammatory drugs. In my case, I was able to breathe normally (without pain) after about 2-3 months of treatment with prednisolone. However, depending on how much your lungs are affected (how much sarcoidosis has spread), you may be left with shortness of breathe...

As well, you may experience desaturation (low blood oxygen concentration) during physical activity. I have a 47-48% lung capacity, and I usually desaturate between 7-15%, depending on how intense an activity is. For instance, if I climb a hill, I desaturate about 12-15%; if I walk faster, 7-10%; and if I walk slowly, 4-7%. It all depends on how I feel each day. Sometimes I feel ok, so I desaturate less...

As Tangles suggested, you should definitely see a pneumologist. Only a specialist in lung diseases can assess your pulmonary condition. And pulmonary srcoidosis can relate to other lung diseases (for instance, if you have fibrous tissue in your lungs - I don't say you have it, but if you have - it may cause small pneumothoraxes, which may also lead to shortness of breath and pain). So, the best thing you can do now is to see a pneumologist and have the necessary tests done for an accurate assessment of your pulmonary condition...

All the best,

Magda

Hi All

Thank you for your kind responses, much appreciated.

I have had a lung function test, which has come back OK. I've recently had an Echo this week, i was advised that i have a small leak in one of the valves, which shouldnt be of any concern, nor affect me in any way, but this could be due to my sarcoidosis and has been referred to the specialist.

Noting the comments, it seems the chest pains are quite common and hopefully they do go away, as it can be quite scary when all of a sudden you struggle to take deep breaths. I had mentioned this to my GP previously and was advised it is quite normal and could be down to anxiety, but I think it is too much of a coincidence that it has started since getting sarc.

Anyways, thanks again.

Regards

Pete

I got told mine were anxiety and panic attacks  kept telling them it wasn't ..my heart rate was normal (apart from the palpations) it is so scary because it feels like you're trying to take deep breaths through a straw...I found that making myself yawn was the only way to catch my breath.thinking  of you ..I  know how scary it is xx

Peter

"could be down to anxiety"

Do not accept this from a doctor.

They use that and stress symptoms whenever they cannot diagnose a condition.

This puts the onus on the patient and makes the doctor look like an angel.

If the doctor does not take your conditions seriously then it is time for a new doctor.

Sometimes they become complacent about their patients.

Good Luck!

Tangles