Stopped Progression of CHP without steroids.

Posted , 2 users are following.

Disease Detection

It started with bit uncomforted in chest once started Gym in March 2017. GP/Specialist suspected heart issue but all heart test (ECG, Treadmill Test and CTCA Test) came normal. Health wise I had not a big issue but started feeling sleepy, exhausted and breathless while doing more exertion. Accidently in CTCA report, doctors found fibrosis of lung and referred to the chest clinic where done more testing X-Ray, CT scan, Broncho scopy and at last Lung Biopsy. After all that effort, it was not fully conclusive but the biopsy was suggestive of Chronic Hypersensitive Pneumonitis or might change to fibrosis in time. They did not find any apparent trigger or reason for CPH. We also did a mold check in house that came negative. Meantime, Lung function test (TLCO) declined to 58 in 6 months. After biopsy result, I went for a second opinion and both hospitals suggested starting steroid. Doctors were predicting 2.5 to 5 years and no remedy to cure or stop progress, only increase life span and better life quality.

My mother had fibrosis and she died before 20 years for the same reason so I was aware of steroids side effect in lung disease. Before the starting of steroid, I tried to confirm with the doctors that steroids stops progression or just help symptomatically. I did not find a satisfactory answer and got information from many places that it can reduce symptoms but cannot stop progressing disease. Doctors told me that they would tapper steroid and convert to immunosuppressant after some time but those medicines have their own side effects.

I decided to make research for alternative treatments, therapy or diets and started working in all possible areas.

Possible reason for CHP in my case could be below.

*) Mold

*) Some weather impurities (There was no birds around me or my house)

*) GRED that might up flow and effect the lungs

*) Some Parasites or Some unknown reasons

**To Target all-possible reasons simultaneously I started all trials together because I was in lack of time. **

*) Serrapeptase –– Twice a day Empty Stomach (Very Important) as anti-scarring for reducing scars in lung.

*) Bromelain -– Twice a day Empty Stomach (Very Important) as anti-inflammatory for reducing inflammation in the Lungs

*) Vitamin D – That is very important for recovery in this kind of disease.

*) Probiotic is for gut settlement and reducing GRED

*) Installed of high quality air purifier and tried to use it maximum possible (at least all night)

*) Spinach juice twice a week as anti-oxidant

*) Pranayam - Breathing excise for 15 minute a day

*) Made my sleeping bed a bit sloppy, High at head side then leg side to reduce acid reflux coming upward.

*) Food grade Hydrogen Peroxide spray inhalation 5 puffs twice a day for 6 month – Now taking some times only

*) In addition, I started regular walk of 20 minute and one-day gym due to pre-diabetic condition to reduce sugar level in blood. Now I am not pre-diabetic.

Below are the things I started but stopped due to side effects

*) CBD - done reaction, raised my blood pressure so stopped.

*) L-Glutamine - become heavy on stomach so stopped

Finally

I was monitoring situation, first LFT every 3 month then every 6 month. As the UK has no policy to do CT scan, I got it done from other country every year to check the situation.

After all this started, with in 6 month the Lung function test (TLCO) started improving from 58 and coming back to normal and reached 74. Now all feelings of illness, sleepiness and breathlessness gone. Breathing is improved. We have LFT every 6 months now to monitor. Doctors want to close my case (Which I do not want because I want to monitor situation continuously).

For the last one and half Years, I am perfectly fine, not any feeling of illness or uncomforting. I am writing this so someone can get help from my experience. Let me know if need any info/help.

0 likes, 1 reply

1 Reply

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.